Young Man Diagnosed with Autism is Saving Lives Alongside His Mother

By: Jamie Solis

Joey’s story aired on Good Morning America five years ago, making him one of the first children to represent adolescent medical cannabis patients, who had been otherwise faceless in the mainstream media. Audiences were instantly captivated by Joey, a young boy from Orange County who is diagnosed with having Autism Spectrum Disorder and Duchenne Muscular Dystrophy. As Joey got older, his symptoms grew more and more severe. Doctors tried what they knew, prescribing him up to 13 medications at one point. At nine years old, Joey weighed only 42 pounds, and his mother was afraid she was going to lose him. After doing some research, Joey’s mom introduced medical cannabis oil infused brownies into Joey’s diet. He immediately gained an appetite, slept easier and started foraging his path to an overall happier life.

It took Joey trying around 15 different strains over the course of numerous years to finally find the best match to alleviate his symptoms. The strain, now called “Joey’s Strain,” comes from Kushman Genetics, and is available at Buds & Roses in Los Angeles. The information regarding the genetics and cannabinoid levels of Joey’s Strain are not available yet. However, we speculate that it may be an indica-dominant strain, because indica-dominants are often prescribed to aid with symptoms of autism, ADD and insomnia. Joey’s mother, Mieko Hester-Perez, has worked with hundreds of families, and each family has found success with cannabis treatment when using Joey’s Strain.

The Woman Behind the Hero

Mieko Hester-Perez, Joey’s mom, is the co-founder of The Unconventional Foundation for Autism (UF4A), and she has been working professionally as a legal secretary since she was 20. Mieko has appeared on countless media outlets, educating the world on how her son’s quality of life has improved with medical cannabis, which in turn has bettered her family’s quality of life as well. This mother of three lives by a motto of paying-it-forward by connecting with families across the country as a consultant who helps them navigate through medical cannabis treatment for their children. Each family receives confidential guidance that is tailored to their child’s needs, and her goal is to protect the families by aiding them in safely moving forward with the treatment while still abiding by laws and regulations.

Since medical cannabis is missing an informational sheet explaining recommended dosages and possible side-effects, Mieko is typically asked by parents how to approach starting a regime of cannabis for their children. She explains some of the type of help she offers, “I teach parents how to introduce new foods when placing their child on cannabis, because most of these children are, like most children, picky eaters.” Kids who are living with autism can be extremely finicky eaters, so Mieko shares how easy it is to offer organic fruits and vegetables to these children utilizing cannabis, “One of the joys of the treatment is when the child does have cannabis, within 10 or 15 minutes you can introduce fruits.”

Mieko often looks around and wonders how she got to this point in her life, where she is now considered an expert in the intersecting worlds of cannabis, special needs, law and legislation. She is extremely grateful for all of the supporters she has met along the way, with one of her fondest memories being the time she and Joey were invited as VIPs to speak at Cypress Hill Smokeout. This was Joey’s first concert, so Mieko holds the memory of this outing especially close to her heart. Sitting backstage before the show, these musical artists were interested in hearing Joey and Mieko’s story. After listening to a little about Joey’s life, B-Real of Cypress Hill were extremely receptive to the cause. Mieko shares, “I thought that these guys, B-Real, gets it. This new generation gets what I’m doing.”

Mieko shares that due to Joey’s fatal muscular dystrophy, he may not be with us for too much longer. This devastating reality along with all the positive support Mieko has gained along the way keeps her motivated to pay-it-forward to other families. When praised for her commitment to helping others, Mieko is very humble in saying, “I feel like Joey has helped more people today than most people help in a lifetime, and I’m very privileged to be a part of it.”

Originally Published by Culture Magazine on Oct. 2, 2014:  http://ireadculture.com/article-4574-young-man-diagnosed-with-autism-is-saving-lives-alongside-his-mother.html